Skip to main content

Table 2 APPEAL-2: sample quotes from French APPEAL-2 participants

From: Allergy to Peanuts imPacting Emotions And Life (APPEAL): the impact of peanut allergy on children, adolescents, adults and caregivers in France

  Sample quotes from adults, adolescents and children with PA Sample quotes from caregivers
Daily coping strategies
 Daily monitoring/vigilance “If we find a food that we often use, even if we use it all the time we still check if it’s peanut or not because they may not use peanuts and suddenly, they use peanuts”—Female, age 10 “We have completely banished peanuts from the house, and whenever we are around other people, we are extremely careful.”—Female caregiver of boy aged 5
 Communicating “I don’t care, but I don’t like people in general to know. For me, it’s something private that doesn’t have to be known.”—Male, age 15 “Whenever she is invited to a birthday party, I warn the mom or the person organising the party when I drop her. Then they are happy I mentioned it and they tell me what they had planned for snacks.”—Female caregiver of girl aged 9
 Practicalities “I always choose vacation spots that are near to the hospital… it has to be less than half an hour from a hospital or there are too many risks. Then I call the hotel when it’s all-inclusive to know if they cook with groundnut oil.”—Female, age 27 “I ask them to be really specific on what they’re going to make and which brand they’re going to use. It’s very intrusive, it’s like we’re the FBI or something.”—Female caregiver of girl aged 15
HRQL impacts
 Social/school activities “For parties, it depends if it’s a close friend, he’ll be more careful what he takes, he won’t put peanuts on the tables. With the others, it’s more complicated, maybe I’ll eat before I go, so I don’t eat what’s there, to limit the risks. I will warn them, but then they won’t necessarily be careful.”—Female, age 15 “It was a bit hard on a social level at first, but our friends understood pretty quickly. It’s in moments like this where we get to see who our real friends are. Sometimes, we are told that we should come without children because it is complicated.”—Female caregiver of girl aged 15
 Relationships “Some of my friends find it weird that I cannot eat the same things as them. So I tell them, but it’s useless because they don’t understand. They only understand that they should stay away from me.”—Male, age 9 “I feel like my daughter sees me as a tyrant and not as a cool mom compared to her friends’ moms.”—Female caregiver of girl aged 8
 Emotions “It pains me because I’m the only one with an allergy and when I’m invited to a party, everyone can eat without thinking and I cannot.”—Male, age 10 “I felt stressed out, and anxious, but now I simply feel a bit annoyed with the fact that we need to be careful about what she eats.”—Female caregiver of girl aged 12
 Bullying “There were people eating chocolate at school and they offered some to me, and I said no because I was allergic. And then, they started laughing at me because they could eat it and I couldn’t. It only happened a few times, but it makes me feel bad. I always tell my mom and she talks to the kids’ parents to make them stop.”—Male, age 9 “So the opinion of others really had an impact on him as well back then, because certain kids can be quite insensitive when they learn he is allergic, as if it were a disease.”—Female caregiver of boy aged 12
 Work “When I see my colleagues going to the fast-food restaurant next door and I eat from my lunchbox, I am frustrated. I tell myself that I could have shared a good time with my colleagues and I am there with my lunchbox.”—Female, age 28 “So I had to switch jobs because of that and this is why I can talk to you at this time. I cannot have regular office hours because I’m too scared he might have a reaction so I don’t want him to eat in the canteen.”—Female caregiver of boy aged 9
  1. HRQL health-related quality of life