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Table 1 COVID-19 vaccine hesitancy questionnaire

From: Understanding attitudes and obstacles to vaccination against COVID-19 in patients with primary immunodeficiency

Question

Answer choices

Responses

(%)

n = 

I accept and have read the Privacy & Consent Statement

Agree

99.55%

446

Disagree

0.45%

2

 

Responses

448

Skipped

1

 

Total

449

Age

[Open]

Total

372

Date of birth

[Open]

Total

355

Gender

Female

75.4%

285

Male

24.07%

91

Non-Binary

0.53%

2

Unknown/undecided

0%

0

Other (please specify)

0%

0

 

Total

378

Which of the following best represents your racial or ethnic heritage? (Choose all that apply)

Black, Afro-Caribbean, African-Canadian

0.84%

3

Caucasian

92.42%

329

East Asian or Asian

0.56%

2

First Nations

0.28%

1

French Canadian

2.81%

10

Hispanic/Latino

0.84%

3

Inuit

0%

0

Metis

1.12%

4

Middle Eastern or Arab Canadian

0.28%

1

Non-Hispanic White or Euro-Canadian

6.46%

23

Pacific Islander

0.28%

1

South Asian

0.28%

1

 

Total

356

Do you have a diagnosis of a primary immunodeficiency?

Yes

67.82%

255

No

4.52%

17

Please specify which one if known (ex. CVID, XLA etc.)

27.66%

104

 

Total

376

Have you already received the COVID-19 vaccine?

Yes, 1st dose

19.68%

74

Yes, 1st and 2nd dose

1.33%

5

No, I have not had the COVID-19 vaccine

78.99%

297

 

Total

376

If you answered yes to the previous question, which vaccine did you receive?

Moderna

7.63%

10

Pfizer

38.17%

50

Johnson and Johnson

0%

0

AstraZeneca

8.4%

11

I don’t know

6.11%

8

N/A

39.69%

52

 

Total

131

If you have not received the COVID-19 vaccine, do you plan on getting vaccinated when it is available to you?

Very likely

76.22%

282

Somewhat likely

5.41%

20

Somewhat unlikely

1.89%

7

Very unlikely

2.43%

9

Don’t know

10.00%

37

No

4.05%

15

 

Total

370

If you answered unlikely, very unlikely, don’t know or no to the previous question, please choose all that apply

I am concerned about long-term side-effects that are yet to be uncovered

50.41%

61

I am not sure if there would be benefit as I might not have a response given my underlying immunodeficiency

56.20%

68

I am not confident in the vaccine as it is too new and the process feels rushed

30.58%

37

I have a history of allergies and am afraid of reacting to the vaccine

32.23%

39

Even if the COVID-19 vaccine is available to me, I plan on waiting for more data being available on effectiveness and side-effects before deciding on whether I will get the vaccine

22.31%

27

I am skeptical of the science behind the COVID-19 vaccine

16.53%

20

I am skeptical of the medical system and the data regarding these vaccines

14.88%

18

I do not believe in vaccination

1.65%

2

I just do not want to get vaccinated

2.48%

3

I already have or think I have contracted COVID-19

4.96%

6

Other (please specify)

31.40%

38

 

Total

121

Do you try to get the flu vaccine every year?

Yes

76.11%

274

No

23.89%

86

 

Total

360

If you answered no to the previous question, please choose all that apply

I am not aware I should get vaccinated yearly for influenza

7.27%

8

My healthcare provider never discussed the importance of vaccination

8.18%

9

I always get sick after the flu shot

17.27%

19

I do not find the flu shot effective in preventing me from getting the flu

13.64%

15

I just chose not to get vaccinated

16.36%

18

Other (please specify)

46.36%

51

N/A

15.45%

17

 

Total

110

Did you receive the flu vaccine for 2020–2021

Yes

71.07%

258

No

28.93%

105

 

Total

363

  1. Data from COVID-19 Vaccine Hesitancy Survey in Primary Immunodeficiency Patients, March 24 to April 7, 2021
  2. N/A not applicable