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Table 1 COVID-19 vaccine hesitancy questionnaire

From: Understanding attitudes and obstacles to vaccination against COVID-19 in patients with primary immunodeficiency

Question Answer choices Responses
(%) n = 
I accept and have read the Privacy & Consent Statement Agree 99.55% 446
Disagree 0.45% 2
  Responses 448
Skipped 1
  Total 449
Age [Open] Total 372
Date of birth [Open] Total 355
Gender Female 75.4% 285
Male 24.07% 91
Non-Binary 0.53% 2
Unknown/undecided 0% 0
Other (please specify) 0% 0
  Total 378
Which of the following best represents your racial or ethnic heritage? (Choose all that apply) Black, Afro-Caribbean, African-Canadian 0.84% 3
Caucasian 92.42% 329
East Asian or Asian 0.56% 2
First Nations 0.28% 1
French Canadian 2.81% 10
Hispanic/Latino 0.84% 3
Inuit 0% 0
Metis 1.12% 4
Middle Eastern or Arab Canadian 0.28% 1
Non-Hispanic White or Euro-Canadian 6.46% 23
Pacific Islander 0.28% 1
South Asian 0.28% 1
  Total 356
Do you have a diagnosis of a primary immunodeficiency? Yes 67.82% 255
No 4.52% 17
Please specify which one if known (ex. CVID, XLA etc.) 27.66% 104
  Total 376
Have you already received the COVID-19 vaccine? Yes, 1st dose 19.68% 74
Yes, 1st and 2nd dose 1.33% 5
No, I have not had the COVID-19 vaccine 78.99% 297
  Total 376
If you answered yes to the previous question, which vaccine did you receive? Moderna 7.63% 10
Pfizer 38.17% 50
Johnson and Johnson 0% 0
AstraZeneca 8.4% 11
I don’t know 6.11% 8
N/A 39.69% 52
  Total 131
If you have not received the COVID-19 vaccine, do you plan on getting vaccinated when it is available to you? Very likely 76.22% 282
Somewhat likely 5.41% 20
Somewhat unlikely 1.89% 7
Very unlikely 2.43% 9
Don’t know 10.00% 37
No 4.05% 15
  Total 370
If you answered unlikely, very unlikely, don’t know or no to the previous question, please choose all that apply I am concerned about long-term side-effects that are yet to be uncovered 50.41% 61
I am not sure if there would be benefit as I might not have a response given my underlying immunodeficiency 56.20% 68
I am not confident in the vaccine as it is too new and the process feels rushed 30.58% 37
I have a history of allergies and am afraid of reacting to the vaccine 32.23% 39
Even if the COVID-19 vaccine is available to me, I plan on waiting for more data being available on effectiveness and side-effects before deciding on whether I will get the vaccine 22.31% 27
I am skeptical of the science behind the COVID-19 vaccine 16.53% 20
I am skeptical of the medical system and the data regarding these vaccines 14.88% 18
I do not believe in vaccination 1.65% 2
I just do not want to get vaccinated 2.48% 3
I already have or think I have contracted COVID-19 4.96% 6
Other (please specify) 31.40% 38
  Total 121
Do you try to get the flu vaccine every year? Yes 76.11% 274
No 23.89% 86
  Total 360
If you answered no to the previous question, please choose all that apply I am not aware I should get vaccinated yearly for influenza 7.27% 8
My healthcare provider never discussed the importance of vaccination 8.18% 9
I always get sick after the flu shot 17.27% 19
I do not find the flu shot effective in preventing me from getting the flu 13.64% 15
I just chose not to get vaccinated 16.36% 18
Other (please specify) 46.36% 51
N/A 15.45% 17
  Total 110
Did you receive the flu vaccine for 2020–2021 Yes 71.07% 258
No 28.93% 105
  Total 363
  1. Data from COVID-19 Vaccine Hesitancy Survey in Primary Immunodeficiency Patients, March 24 to April 7, 2021
  2. N/A not applicable