Table 1 Characteristics of studies that focused on pediatric and caregiver AD education included in the scoping review
From: Patient education in atopic dermatitis: a scoping review
Reference | Follow-up | Study type | Treatment/control no. | Education Method | Outcome measurements | Outcome measure(s) with significant improvement after education. |
|---|---|---|---|---|---|---|
Brown et al. 2018 | 1 month | RCT | 11/26 | Eczema action plan | QoL (IDLQI, CDLQI), provider knowledge and parent comfort with AD management (study designed questionnaire) | Provider knowledge |
Cheong et al. 2018 | Immediately after intervention & 4 weeks | Prospective, observational | N/A | Pharmacist counseling | AD knowledge, caregiver’s level of confidence and caregiver’s satisfaction of counseling | Post intervention: qualitative positive results in satisfaction and confidence 4 weeks: caregiver knowledge |
Chinn et al. 2002 | 4 & 12 weeks | RCT | 0.5-4yrs: 61/54 4-16yrs: 58/62 | Single nurse consultation (30 min) | Family impact (FDI), QoL (IDLQI, CDLQI) | None |
Liang et al. 2018 | 3 & 6 months | RCT | 293/293 | Education program (4, once-weekly group sessions) | Disease severity (SCORAD), QoL (IDLQI, CDLQI), family and patient knowledge (study designed questionnaire) | 3 months: disease severity, IDLQI 6 months: disease severity, IDLQI, knowledge |
LeBovidge et al. 2021 | 3 months | RCT | 91/84 | Caregiver handbook | AD symptoms (POEM), caregiver confidence in management (PASECI), disease severity (EASI), QoL (IDLQI, CDLQI), family impact (FDI) | Caregiver confidence |
Muzzolon et al. 2021 | 2–5 months | Nonrandomized clinical trail | 21/27 | “Dermatitis Club” group program (two, 90- minute sessions) | Disease severity (SCORAD, EASI), QoL (CDLQI), family impact (FDI) | QoL, family impact, disease severity |
Ohya et al. 2013 | 3 & 6 months | RCT | 29/30 | Booklet and parental education program (2- day program) | Primary: disease severity (SCOARD), symptom scores (pruritus and sleeplessness, score 0–10), family impact (FDI), corticosteroid anxiety scores (**), usage of corticosteroid (number of tubes and total weight of cream used) | 3 months: symptom scores 6 months: corticosteroid anxiety, usage of corticosteroid, disease severity, symptom scores |
Rolinck-Werninghause et al. 2015 | 2 weeks | Pre-post | N/A | Individual nurse consultations (30–45 min.) | Parental assessment of their self-confidence in care, child’s disease severity and its treatment | Parent self-confidence, severe symptoms |
Ryu & Lee | 6 weeks during intervention & 2 weeks after intervention complete | Pre-post with controls | 32/77 | School-based atopy care program (6 sessions, 40 min each) | Objective severity (SCORAD), subjective severity (SAS), sleep disturbance, QoL (CDLQI), parent knowledge (PK), parent self-efficacy (PE), compliance of parents (PC), QoL parent (AIS) | During intervention: knowledge, efficacy, subjective severity 2 weeks after intervention: none |
Shi et al. 2013 | Immediately after education | RCT | 18/19 | Eczema action plan | Patient/caregiver understanding regarding treatment regimen and understanding of eczema (study designed questionnaire). | Understanding treatment |
Son & Lim 2014 | 2 weeks | Quasi-experimental | 20/20 | Web-based educational program | Disease severity (POEM), QoL (IDLQI), parental self-efficacy | QoL, self-efficacy |
Staab et al. 2002 | 1 year | RCT | 93/111 | Parental training program (6, weekly group sessions) | Disease severity (SCORAD), QoL and treatment habits (study designed questionnaire), treatment costs and coping strategies (The Trier Scales of Coping). | Treatment habits, treatment costs, coping strategies |