Table 1 Sociodemographic and clinical characteristics of study cohort

Age at interview (years), mean (SD), range

47.9 (15.6), 24–77

Female, n (%)

23 (64%)

Race/ethnicity, n (%)

 White

32 (89%)

 Black or African American

3 (8%)

 Other^a

1 (3%)

Weight^a (lbs), mean, range

199.3, 123–375 (n = 28)

HAE type, n (%)

 Type 1

34 (94%)

 Type 2

2 (6%)

Age at initial HAE diagnosis (y), mean, range

17.1, 4–44 (n = 32)

Family history of HAE, n (%)

29 (81%) (n = 34)

Working status

 Working full-time

22 (61%)

 Retired

6 (17%)

 Working part-time

2 (6%)

 Self-employed

2 (6%)

 Permanently unable to work / disability

2 (6%)

 Looking after home/family or unemployed/seeking work

2 (6%)

Insurance type^b

 Private health insurance

25 (69%)

 Medicare/Medicaid

11 (31%)

 Other

5 (17%)